The report, ‘Dementia does not Discriminate’, produced by the All Party Parliamentary Group (APPG) on Dementia, looks at the experiences of black, Asian and minority ethnic (BAME) communities in dealing with the condition.
Current evidence in this area is limited, but it does indicate there may be lower awareness, higher levels of stigma, and different cultural understandings of dementia among people from BAME communities. The inquiry brought together evidence and understanding about the current problems and challenges. It also found good practice examples where services have been tailored to people with dementia from BAME communities, so that these examples can be shared across the country.
In this work the APPG on Dementia sought evidence from a range of people. This included people with dementia and their carers, health and social care providers and practitioners, and experts in dealing with those challenges that can arise for people living in minority groups.
Dr Karan Jutlla, Senior Lecturer for the Association for Dementia Studies, based at the University of Worcester, has carried out extensive research in this area, and gave evidence to the group on the importance of person-centred dementia care, and developing that care through an understanding of the individual’s unique culture and history.