Dementia Partnerships
Integrated Care Systems: Guidance
These guidance documents published by NHS England and the Local Government Association set out how NHS leaders and organisations will operate with their partners in Integrated Care Systems (ICSs) from April 2022. Read more »
Pre-memory assessment support project briefing
Since the COVID-19 pandemic there has been an increase in the time people need to wait for their memory assessment appointment. This briefing published by the Dementia Change Action Network (DCAN) explores people’s experiences of waiting for a memory assessment. Read more »
Useful tips on the COVID-19 vaccine for people with
dementia
This briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia. Read more »
Dementia wellbeing in the COVID-19 pandemic
This resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway. Read more »
Projections of Older People Living with Dementia and Costs
of Dementia Care in the United Kingdom, 2019–2040
This report published by the Care Policy and Evaluation Centre at the London School of Economics and Political Science provides projections of the number of older people (aged 65 and over) living with dementia in the UK and the costs of healthcare, social care and unpaid care from 2019 to 2040. Read more »
The Many Faces of Dementia
This online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding. Read more »
A Whole Systems Approach to understanding psychological
symptoms in delirium and dementia
This Yorkshire and the Humber Dementia and Older Peooples Mental Health Clinkcal Network event chaired by Dr Rod Kersh provided attendees with an opportunity to hear from local and national innovators and carers to better understand psychological symptoms in delirium and dementia. Read more »
Risk reduction of cognitive decline and dementia
World Health Organization (WHO) Guidelines recommends that people can reduce the risk of cognitive decline and dementia by getting regular exercise, not smoking, avoiding harmful use of alcohol, controlling their weight, eating a healthy diet, and maintaining healthy blood pressure, cholesterol and blood sugar levels. Read more »
What would life be – without a song or dance, what
are we?
This report by the Commission on Dementia and Music outlines the value and benefits of music for people with dementia and looks at the important next steps which can be taken to ensure that everyone with dementia is able to access music. Read more »
Driving with dementia or mild cognitive impairment:
Consensus guidelines for clinicians
The issue of driving with dementia or mild cognitive impairment is of vital importance to patients, their families and friends, and their clinicians. These guidelines set out the responsibilities of clinicians to their patients, and provide a framework for thinking about the management of their driving safety. Read more »
Dementia Commissioning know how guide
This resource aims to enable Clinical Commissioning Groups to achieve and maintain dementia diagnosis rate of at least two-thirds of the estimated number of people with dementia, and improve the quality of and access to post diagnostic care for people living with dementia and their carers. Read more »
Dementia Care Pathway: full implementation guidance
The Dementia Care Pathway: full implementation guidance, published by the National Collaborating Centre for Mental Health (NCCMH), sets out key commissioning and service development considerations in the delivery and quality of care and support for people living with dementia and their families and carers. Read more »
Dementia: assessment, management and support for people
living with dementia and their carers
This NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia. Read more »
Do I see what you see?
In this film, produced by Created Out Of Mind, people share stories and experiences of living with Posterior Cortical Atrophy (PCA), a rare form of dementia that commonly affects vision. Read more »
The Dementia Roadmap
The Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and resources to assist primary care staff to more effectively support people with dementia and cognitive impairment, their families and carers. Read more »
Delirium awareness video
Delirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting. Read more »
NHS Health Check commissioning: Commissioner’s current and
potential use of weighted financial remuneration
This report includes details of a literature review of commissioner’s current and potential use of weighted financial remuneration and provides recommendations for commissioners. Read more »
Implementation guide and resource pack for dementia care
This guide aims to set out the policy drivers and strategic context for transforming dementia care, and why it is of importance to commissioners, providers and sustainability and transformation partnerships (STPs) in supporting delivery of a number of objectives in the Department of Health’s Prime Minister’s challenge on dementia 2020, published February 2015, which complements the aims of the Five Year Forward View, published in October 2014. Read more »
Training resources to improve the dementia component of the
NHS Health Check
These training resources can be used by NHS Health Check trainers and practitioners to improve the quality of their delivery of the dementia component of the check. Read more »
Are we nearly there yet? Enabling people with dementia to
remain at home: a housing perspective
This report published by the Housing LIN sets out the key role housing providers, and in particular social housing providers, can play in supporting people living with dementia to stay independent in the home of their choice for as long as possible. Read more »
Becoming a dementia friendly GP Surgery
This booklet published by Healthwatch Devon aims to enable health centres to adopt dementia friendly practice and to ensure that people with dementia have a positive experience of primary care. Read more »
National Audit of Dementia – third report
The National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016. Read more »
State of Caring 2017
This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date. Read more »
Turning up the volume: unheard voices of people with
dementia
This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. Read more »
Getting the dementia pathway right: Tom and Barbara’s
story
In this scenario – using a fictional patient, Tom – we examine a dementia care pathway, comparing a sub-optimal but not atypical scenario against an ideal pathway. At each stage we have modelled the costs of care, both financial to the commissioner but also the impact on the person and their family’s outcomes and experience. Read more »
Dementia Friendly Housing Charter: A guidance toolkit for a
dementia-friendly approach to housing
This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice. Read more »
Dementia: Good Care Planning
This guide is aimed at primary care and commissioners, particularly GPs, who provide care plan reviews. It is designed to help improve care planning in dementia by supporting a standardised approach, highlighting good practice, ensuring alignment with relevant crosscondition care plans and help to reduce local variation in the process. Read more »
How living with dementia could be
This short animated video highlights how living with dementia could be through the ‘well pathway for dementia’. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local communities. Read more »
Dementia Atlas
The Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country. Read more »
Helping your loved one with dementia eat well
This flowchart published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home. Read more »
Better planning for car ownership and well-being in old
age
This briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people. Read more »
Integrated approach to identifying and assessing Carer
health and wellbeing
This toolkit published by NHS England clarifies the new duties on NHS organisations under the Care Act 2014 and the Children and Families Act 2014, and includes examples of positive practice of work that have proven successful in supporting carers and their families. Read more »
Fix dementia care – NHS and care homes
This report published by the Alzheimer’s Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers. Read more »
Assessment of Cardiac Status Before Prescribing Acetyl
Cholinesterase Inhibitors
The aim of this guidance is to support consistent, evidence-based practice in the cardiac pre-assessment, monitoring and safe prescribing of acetylcholinesterase inhibitors (AChEIs) for people with dementia. Read more »
Dementia rarely travels alone: living with dementia and
other conditions
This report published by the All Party Parliamentary Group on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people. Read more »
DiADeM (Diagnosis of Advanced Dementia Mandate in Care
Homes)
This protocol developed by the Yorkshire and Humber Dementia Strategic Clinical Network aims to support GPs to diagnose dementia for people living with advanced dementia in a care home setting. Read more »
Dementia and comorbidities: Ensuring parity of care
This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year. Read more »
Sharing knowledge and learning across the Well Pathway for
Dementia
This mind map illustrates how the Dementia Partnerships knowledge portal provides access to knowledge and learning across the Well Pathway for Dementia as a vital component of improving and delivering dementia care. Read more »
Health matters: midlife approaches to reduce dementia
risk
This guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia. Read more »
Technology Charter for People Living with Dementia in
Scotland
This Charter has been written in partnership with people living with dementia to drive change and to raise public and professional awareness of how technology can make a difference to the lives of those living with dementia in Scotland. Read more »
Immediate post diagnosis support guidance
This guidance document, published by the London Strategic
Clinical Networks, has been created for professionals to
support people with dementia and their carers immediately
following diagnosis.
Read more »
Commissioner checklist for dementia
This integrated checklist, published by the London Strategic Clinical Networks, will help commissioners to commission services that provide excellent care to people with dementia in both specialist and non specialist care settings. Read more »
Dementia advisers survey
This report published by Ipsos MORI presents the findings of a survey into the provision of dementia adviser services throughout England. Read more »
NHS Outcomes Framework 2016-17
This framework published by the Department of Health sets out the outcomes and corresponding indicators that will be used to hold NHS England to account for improvements in health outcomes after April 2016. Read more »
DeAR-GP (Dementia Assessment Referral to GP)
DeAR–GP, developed by the South London Health Innovation Network, is a simple paper based case-finding tool which has been designed for use by care workers to identify people who are showing signs of dementia. Read more »
The experiences, needs and outcomes for carers of people
with dementia
This comprehensive literature review undertaken by the the
Association of Dementia Studies at the University of
Worcester, examines the experiences and needs of carers of
people with dementia and the evidence of outcomes produced
from a wide range of interventions.
Read more »
Care of dying adults in the last days of life
This guideline published by the National Institute for Health and Care Excellence (NICE) covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. The guideline contain specific advice relevant when caring for people with dementia. Read more »
Prime Minister’s Challenge on Dementia 2020 Implementation
plan
This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020. Read more »
The dementia profile
The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform. Read more »
The Daily Sparkle
The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK’s leading care organisations such as the NHS, AgeUK and DementiaUK. Read more »