This resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway. Read more »
The Dementia Care Pathway: full implementation guidance, published by the National Collaborating Centre for Mental Health (NCCMH), sets out key commissioning and service development considerations in the delivery and quality of care and support for people living with dementia and their families and carers. Read more »
In this film, produced by Created Out Of Mind, people share stories and experiences of living with Posterior Cortical Atrophy (PCA), a rare form of dementia that commonly affects vision. Read more »
The Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and resources to assist primary care staff to more effectively support people with dementia and cognitive impairment, their families and carers. Read more »
These training resources can be used by NHS Health Check trainers and practitioners to improve the quality of their delivery of the dementia component of the check. Read more »
In this scenario – using a fictional patient, Tom – we examine a dementia care pathway, comparing a sub-optimal but not atypical scenario against an ideal pathway. At each stage we have modelled the costs of care, both financial to the commissioner but also the impact on the person and their family’s outcomes and experience. Read more »
This short animated video highlights how living with dementia could be through the ‘well pathway for dementia’. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local communities. Read more »
Pre-memory assessment support project briefing
Since the COVID-19 pandemic there has been an increase in the time people need to wait for their memory assessment appointment. This briefing published by the Dementia Change Action Network (DCAN) explores people’s experiences of waiting for a memory assessment. Read more »
Useful tips on the COVID-19 vaccine for people with dementia
This briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia. Read more »
Projections of Older People Living with Dementia and Costs of Dementia Care in the United Kingdom, 2019–2040
This report published by the Care Policy and Evaluation Centre at the London School of Economics and Political Science provides projections of the number of older people (aged 65 and over) living with dementia in the UK and the costs of healthcare, social care and unpaid care from 2019 to 2040. Read more »
The Many Faces of Dementia
This online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding. Read more »
A Whole Systems Approach to understanding psychological symptoms in delirium and dementia
This Yorkshire and the Humber Dementia and Older Peooples Mental Health Clinkcal Network event chaired by Dr Rod Kersh provided attendees with an opportunity to hear from local and national innovators and carers to better understand psychological symptoms in delirium and dementia. Read more »
Risk reduction of cognitive decline and dementia
World Health Organization (WHO) Guidelines recommends that people can reduce the risk of cognitive decline and dementia by getting regular exercise, not smoking, avoiding harmful use of alcohol, controlling their weight, eating a healthy diet, and maintaining healthy blood pressure, cholesterol and blood sugar levels. Read more »
Music for Dementia 2020
Music for Dementia 2020 is campaigning to make music free for people living with dementia by 2020. Led by The Utley Foundation, the campaign is a direct and positive response to the Commission into Dementia and Music report What would life be – without a song and dance, what are we?. Read more »
What would life be – without a song or dance, what are we?
This report by the Commission on Dementia and Music outlines the value and benefits of music for people with dementia and looks at the important next steps which can be taken to ensure that everyone with dementia is able to access music. Read more »
Driving with dementia or mild cognitive impairment: Consensus guidelines for clinicians
The issue of driving with dementia or mild cognitive impairment is of vital importance to patients, their families and friends, and their clinicians. These guidelines set out the responsibilities of clinicians to their patients, and provide a framework for thinking about the management of their driving safety. Read more »
Dementia Commissioning know how guide
This resource aims to enable Clinical Commissioning Groups to achieve and maintain dementia diagnosis rate of at least two-thirds of the estimated number of people with dementia, and improve the quality of and access to post diagnostic care for people living with dementia and their carers. Read more »
Dementia: assessment, management and support for people living with dementia and their carers
This NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia. Read more »
Delirium awareness video
Delirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting. Read more »
NHS Health Check commissioning: Commissioner’s current and potential use of weighted financial remuneration
This report includes details of a literature review of commissioner’s current and potential use of weighted financial remuneration and provides recommendations for commissioners. Read more »
John’s Campaign
John’s Campaign is about the right of people who care for someone living with dementia to be able to stay with them – and the right of people with dementia to be able to have a family carer stay with them. Read more »
Implementation guide and resource pack for dementia care
This guide aims to set out the policy drivers and strategic context for transforming dementia care, and why it is of importance to commissioners, providers and sustainability and transformation partnerships (STPs) in supporting delivery of a number of objectives in the Department of Health’s Prime Minister’s challenge on dementia 2020, published February 2015, which complements the aims of the Five Year Forward View, published in October 2014. Read more »
Are we nearly there yet? Enabling people with dementia to remain at home: a housing perspective
This report published by the Housing LIN sets out the key role housing providers, and in particular social housing providers, can play in supporting people living with dementia to stay independent in the home of their choice for as long as possible. Read more »
Becoming a dementia friendly GP Surgery
This booklet published by Healthwatch Devon aims to enable health centres to adopt dementia friendly practice and to ensure that people with dementia have a positive experience of primary care. Read more »
National Audit of Dementia – third report
The National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016. Read more »
State of Caring 2017
This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date. Read more »
Turning up the volume: unheard voices of people with dementia
This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. Read more »