This project aimed to identify the major barriers for dementia patients and their carers in accessing good quality end of life care. The research findings suggest cost effective ways of enabling improvements.

The research was undertaken in the London Borough of Haringey. The report is based

• discussions at meetings with health service professionals who have cared for a wide range of people with dementia
• conversations with carers of people with dementia, and
• an analysis of the histories of care received by a small sample of people with dementia who died in Haringey between May 2008 and March 2009.

Download: End of life care for people with dementia