The experiences, needs and outcomes for carers of people with dementia
This comprehensive literature review undertaken by the the Association of Dementia Studies at the University of Worcester, examines the experiences and needs of carers of people with dementia and the evidence of outcomes produced from a wide range of interventions.
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Race Against Dementia
Race Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK. Read more »
Care of dying adults in the last days of life
This guideline published by the National Institute for Health and Care Excellence (NICE) covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. The guideline contain specific advice relevant when caring for people with dementia. Read more »
Rotherham, Doncaster and South Humber memory service
Rotherham, Doncaster and South Humber NHS Foundation Trust (RDaSH) provide a specialist led memory service that serves approximately 50,000 people of age 65 and over living in Rotherham, Doncaster and South Humber. Read more »
Dementia United
Over the next five years, through working with partners across Greater Manchester, Dementia United aims to improve the lived experiences of people with dementia, and reduce pressure on the health and social care system. In short, Dementia United is aiming to make Greater Manchester the best place in the world to live for people with dementia. Read more »
Prime Minister’s Challenge on Dementia 2020 Implementation plan
This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020. Read more »
The dementia profile
The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform. Read more »
Active Minds dementia activity resources
Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives – enjoying activities that are meaningful to them. Read more »
Family support rooms at Pinderfields Hospital
The family support rooms at Pinderfields hospital, run by Mid Yorkshire Hospitals NHS Trust, enable families to stay together when a family member has dementia or is at a palliative-care stage of their life. Read more »
The Daily Sparkle
The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK’s leading care organisations such as the NHS, AgeUK and DementiaUK. Read more »
ExtraCare Charitable Trust
The ExtraCare Charitable Trust ia a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare’s award-winning Enriched Opportunities Programme (EOP) supports residents with dementia and dementia-related conditions. Read more »
Joint declaration on post-diagnostic dementia care and support
This joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care. Read more »
Arts 4 Dementia
Arts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers. Read more »
Thrive
Thrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation Read more »
Togetherness Dementia Choir
The Togetherness Dementia Choir in Scunthorpe provides a stimulating and fun activity for those people who have a diagnosis of dementia or who are having difficulties with their memory. Read more »
PM announces funding for UK Dementia Research Institute
The UK’s first Dementia Research Institute will receive up to £150 million to drive forward research and innovation in fighting dementia. Read more »
Digital Timelines
Digital Timelines is a new and innovative European Union supported project that seeks to support people with memory loss or dementia by developing a training course which will instruct formal and informal carers, family and friends to create a Personal Digital Memory (PDM) tool. Read more »
Dementia core skills education and training framework
This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care. Read more »
Dementia and homecare: driving quality and innovation
This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment. Read more »
Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset
This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life. Read more »
Making your home dementia friendly
This booklet published by the Alzheimer’s Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing. Read more »
A manual for good social work practice: supporting adults who have dementia
This guidance is designed to be used by adult social workers specialising in dementia at all levels, from front line practitioners to senior social workers, social work supervisors and managers, to support them to deliver the best outcomes for the people with whom they work with. Read more »
Approaching an unthinkable future – Understanding the support needs of people living with young onset dementia
This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015. Read more »
Prevalence of dementia in population groups by protected characteristics: a systematic review of the literature
This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion. Read more »
‘Do OD’ mobile app
This mobile app commissioned by NHS Employers has been created to enable effective culture change within the NHS and will be of interest to anyone interested in improving organisational culture. Read more »
Models of dementia assessment and diagnosis: Indicative cost review
This report published by NHS England is designed to provide commissioners and service providers with detailed information about real alternative models of dementia assessment and diagnosis, with a cost breakdown. Read more »
How can we make our cities dementia friendly?
This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York. Read more »
Peer Support for People with Dementia: A social return on investment study
This report published by the Health Innovation Network, the Academic Health Science Network for South London, demonstrates that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment. Read more »
Tailored resource for carers and care providers on supporting people to live well with dementia
This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers. Read more »
NHS Wellbeing tool
The NHS Wellbeing tool was commissioned by NHS Employers to raise awareness of the importance of emotional wellbeing and to signpost NHS staff to the right resources to support them. Read more »
Evaluation of the Bradford Dementia Friendly Communities Programme
This report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like. Read more »
Developing a national user movement of people with dementia
This report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them. Read more »
Evaluation of the York Dementia Friendly Communities Programme
This report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme. Read more »
World Alzheimer Report 2015: The Global Impact of Dementia
The World Alzheimer Report 2015, ‘The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends’ makes key recommendations to provide a global framework for action on dementia. Read more »
Accessible Information Standard
The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate. Read more »
Slaying the Demon: The Dementia Challenge – Progress and Achievements
This report explores work that is currently being developed across the South of England in the delivery of high quality care and support for patients and families living with dementia. Read more »
Computer aided learning packages about dementia
The University of Nottingham has published a range of useful computer aided learning packages about dementia that will help improve knowledge and skills about dementia. Read more »
Dementia Pathfinders
Dementia Pathfinders is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field. Read more »
Reading well books on prescription for dementia
The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition. Read more »
The Appointment
This video published by Health Education England (HEE) aimed at dental professionals seeks to raise awareness of the issues faced by patients with dementia when attending a dental appointment. Read more »
Dementia Diaries
Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. Read more »
Pathways 4 Life, Walsall
Pathways 4 Life dementia support worker service for hard to reach groups is a partnership initiative between the Accord Group and Age UK Walsall offering dementia support and advice to Black and Minority Ethnic groups (BME) in Walsall. Read more »
Dementia Engagement and Empowerment Project (DEEP)
The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK to influence the services and policies that affect them. Read more »
Women and Dementia: A global research overview
This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective. Read more »
Innovations in Dementia
Innovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia. Read more »
Women’s experiences of dementia
The Women’s experiences of dementia website contains a wealth of stories which highlight the experiences of women affected by dementia. Read more »
Dementia Diagnosis Ambition – Learning from East of England CCGs
This briefing published by the East of England Strategic Clinical Network outlines learning points for achieving the dementia diagnosis ambition from Clinical Commissioning Groups. Read more »
Top tips for achieving the dementia diagnosis ambition
This one-page briefing published by the East of England Strategic Clinical Network provides practical top tips for achieving the dementia diagnosis ambition. Read more »
iSPACE – supporting dementia friendly GP surgeries in Wessex
The iSPACE project led by Dr Nicola Decker, a GP at Oakley and Overton Surgery and dementia lead for the North Hampshire Clinical Commissioning Group, has developed a suite of resources to help make a GP surgery dementia friendly. Read more »
Dementia Team of the Year
The South Devon and Torbay Clinical Commissioning Group and Devon Partnership NHS Trust were jointly named Dementia Team of the Year at a British Medical Journal awards ceremony this week. Read more »